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utsfl:classroom:seminars:pbh203h [2023/08/18 15:56] – added story of baby Beatrice, anencephaly mmccannutsfl:classroom:seminars:pbh203h [2023/08/18 15:58] (current) – mmccann
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       * Story of Grace and the founding of the organization, //Carrying to Term//:https://carryingtoterm.org/stories/stephanie-and-andy-story/       * Story of Grace and the founding of the organization, //Carrying to Term//:https://carryingtoterm.org/stories/stephanie-and-andy-story/
       * {{youtube>Ho-Jb0MngX8}}       * {{youtube>Ho-Jb0MngX8}}
 +      * https://www.dyingtomeetyou.com/p/she-who-brings-happiness?fbclid=IwAR1GLE4dzfBrPYQLnwcAwITi5DKBz4caeDg_c6wCqrrDKMNBFT6XEeZHgyk John Serafini, whose daughter Beatrice had anencephaly and died 38 minutes after birth
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 +> John also mentioned that he found the term “life-limiting condition” better language compared to some of the alternatives he heard throughout their experience. “But,” he stressed, **“it’s important to remember that all of our lives have ‘limiting conditions.’”**
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     * [[wp>Trisomy 18]] (Edward's Syndrome) - Eliot     * [[wp>Trisomy 18]] (Edward's Syndrome) - Eliot
       * {{youtube>th6Njr-qkq0}}       * {{youtube>th6Njr-qkq0}}
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     * http://www.mercatornet.com/articles/view/profound_wonder_not_fear_is_the_way_to_welcome_babies_with_fatal_conditions     * http://www.mercatornet.com/articles/view/profound_wonder_not_fear_is_the_way_to_welcome_babies_with_fatal_conditions
     * https://www.wsj.com/articles/when-parents-know-their-newborns-wont-live-long-1489175596     * https://www.wsj.com/articles/when-parents-know-their-newborns-wont-live-long-1489175596
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-Prenatal diagnosis of Anencephaly: https://www.dyingtomeetyou.com/p/she-who-brings-happiness?fbclid=IwAR1GLE4dzfBrPYQLnwcAwITi5DKBz4caeDg_c6wCqrrDKMNBFT6XEeZHgyk John Serafini, whose daughter Beatrice had anencephaly and died 38 minutes after birth 
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-> John also mentioned that he found the term “life-limiting condition” better language compared to some of the alternatives he heard throughout their experience. “But,” he stressed, “it’s important to remember that all of our lives have ‘limiting conditions.’” 
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