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utsfl:classroom:seminars:pbh203h [2017/08/22 12:29] – mmccannutsfl:classroom:seminars:pbh203h [2023/08/18 15:58] (current) – mmccann
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 ====== PBH203H: Health of the Child ====== ====== PBH203H: Health of the Child ======
 +FIXME review this website:
 +https://www.everylifecounts.ie/
  
 +{{youtube>FWWW1lMrLAE}}
 +
 +===== Premature Birth ======
 +Amazing story:
 +https://www.guinnessworldrecords.com/news/2023/3/0-chance-of-survival-worlds-most-premature-twins-defy-doctors-740148
 +
 +Had to fight to get medical care at this extremely early stage
 +
 +{{youtube>kgLNK4jUhT0}}
 +
 +===== Ablism: Non-Terminal Disability Issues =====
   * FIXME amniocentisis, pre-natal screening, eugenics   * FIXME amniocentisis, pre-natal screening, eugenics
-  * Non-terminal Disability issues +  * [[wp>Cleft_lip_and_cleft_palate]] and cosmetic [[wp>Cleft_lip_and_cleft_palate#Abortion_controversy]] 
-    * [[wp>Cleft_lip_and_cleft_palate]] and cosmetic [[wp>Cleft_lip_and_cleft_palate#Abortion_controversy]] +  * [[wp>Trisomy 21]] 
-    * [[wp>Trisomy 21]] +    * {{youtube>jSExm3i3Jns}} 
-    * [[wp>Microcephaly]] (Zika virus) +    * FIXME stats on down syndrome and abortion (90-100%) 
-    * [[https://www.lifesitenews.com/opinion/meet-noah-wall-the-boy-without-a-brain-talks-counts-and-goes-to-school|Noah Wall]]+    * [[https://www.facebook.com/watch/?v=1956142474699469&external_log_id=2271047c7a73476171ab3deb3fbb96b6&q=christina%20lee%20fast|Christina Lee Fast: My Life is Worth Living]] 
 +  * [[wp>Microcephaly]] (Zika virus) 
 +  * [[https://www.lifesitenews.com/opinion/meet-noah-wall-the-boy-without-a-brain-talks-counts-and-goes-to-school|Noah Wall]] 
 + 
 +[[https://youtu.be/UkKi4B4yvdA]] 
 + 
 +https://www.instagram.com/reel/CvIbKQdNBvV/?igshid=MzRlODBiNWFlZA== 
 + 
 +===== Terminal/Life Threatening Prognoses =====
   * Terminal/bleak prognosis   * Terminal/bleak prognosis
     * [[wp>Anencephaly]]     * [[wp>Anencephaly]]
-    * [[wp>Trisomy 13]] +      * Story of Grace and the founding of the organization, //Carrying to Term//:https://carryingtoterm.org/stories/stephanie-and-andy-story/ 
-      * [[https://www.youtube.com/watch?v=ToNWquoXqJI|Choosing Thomas]] +      * {{youtube>Ho-Jb0MngX8}} 
-    * [[wp>Trisomy 18]] +      * https://www.dyingtomeetyou.com/p/she-who-brings-happiness?fbclid=IwAR1GLE4dzfBrPYQLnwcAwITi5DKBz4caeDg_c6wCqrrDKMNBFT6XEeZHgyk John Serafini, whose daughter Beatrice had anencephaly and died 38 minutes after birth 
-      * [[https://www.youtube.com/watch?v=th6Njr-qkq0|99 Balloons]] + 
-    * [[wp>Potter's Syndrome]] +> John also mentioned that he found the term “life-limiting condition” better language compared to some of the alternatives he heard throughout their experience. “But,” he stressed, **“it’s important to remember that all of our lives have ‘limiting conditions.’”** 
-      * Matthew+ 
 +    * [[wp>Trisomy 18]] (Edward's Syndrome) - Eliot 
 +      * {{youtube>th6Njr-qkq0}} 
 +      * Eliot's legacy: 99 Balloons and Matt Mooney FIXME details from 2016 Toronto visit... 
 +      * Bonus: [[https://www.youtube.com/watch?v=392wM7-K2HM|Jaxton's story]] 
 +    * [[wp>Trisomy 13]] - Thomas 
 +      * {{youtube>ToNWquoXqJI}} 
 +      * FIXME need a shorter version of this to share it in a seminar 
 +    * [[wp>Potter's Syndrome]] - Matthew 
 +      * FIXME from Blaise's personal notes, if his mom gives permission
     * http://www.mercatornet.com/articles/view/profound_wonder_not_fear_is_the_way_to_welcome_babies_with_fatal_conditions     * http://www.mercatornet.com/articles/view/profound_wonder_not_fear_is_the_way_to_welcome_babies_with_fatal_conditions
     * https://www.wsj.com/articles/when-parents-know-their-newborns-wont-live-long-1489175596     * https://www.wsj.com/articles/when-parents-know-their-newborns-wont-live-long-1489175596
-    *  
  
 Dialogue: Dialogue:
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     * If they bite the bullet, then it's really abortion as euthanasia and it's QUIT apologetics     * If they bite the bullet, then it's really abortion as euthanasia and it's QUIT apologetics
     * **Bleak prognosis for the child**: Stephanie Gray offers a conversation approach      * **Bleak prognosis for the child**: Stephanie Gray offers a conversation approach 
-      * {{youtube>FwIhCQC8qgs?medium}} (until 35:39) --> When we have a short amount of time left with a loved one, why would we cut that short time even shorter?+      * {{youtube>FwIhCQC8qgs?medium}} (until 35:39) --> When we have a short amount of time left with a loved one, why would we cut that short time even shorter?  
 +      * http://www.stephaniegray.info/blog/2015/12/18/so-your-child-has-down-syndrome
       * in dialogue, this line of questioning tends to work really well because if it's a heart issue, the Q is powerful for addressing the heart, and if it's a head issue re: status of the fetus, it will be easy to re-direct back to basic apologetics       * in dialogue, this line of questioning tends to work really well because if it's a heart issue, the Q is powerful for addressing the heart, and if it's a head issue re: status of the fetus, it will be easy to re-direct back to basic apologetics
 +    * http://www.mirror.co.uk/lifestyle/family/why-chose-meet-baby-even-11413659
 +      * "Simply, we were not going to be the cause of our daughter's death. Her death would already be a source of suffering, we would not add to her suffering by means of abortion...Who would we be to have denied her life and not given her that chance to meet and be loved by her family?"
 +
 +==== Uncertain Prognoses ====
 +  * FIXME Brandan Bosma and Mosiac Trisomy 18
 +    * Remember Trisomy 18, and how it's always terminal?
 +    * {{youtube>bzPK4Kjtxuk}} FIXME narrow down the time range for a shorter excerpt
 +      * Brandon's personal introduction
 +      * He goes through the dehumanizing ways in which medical professionals and textbooks refer to people with trisomy 13 or trisomy 18 (e.g. "may develop personality")
 +      * Down Syndrome stats (5min)
 +      * What the medical community has said about other people living with mosiaic trisomy 18 (~10min?)
 +        * dehumanizing clinic images that pathologize people, instead of photos of trisomy kids with their families
 +        * Doctors often tell parents: "no survivors" - yet just look on social media and at the SOFT community and you can see the survivors
 +      * Dr. Will Johnson: "When you only see death as a solution you throw creativity out the window."
 +    * OR {{youtube>Lnynjzf6vDs}}
 +    * "hole in his heart" - but all he needed was a heart surgery after birth
 +    * He faced such discrimination from medical professionals who felt his cause was hopeless and that he was doomed
 +      * FIXME his comparison to poor outcomes from Trisomy 21 50 years ago, until care improved... medical discrimination
 +      * {{youtube>ZIGZEaHXxTc}}
 +    * CPL conference, and medical student saying, "We learned last week that Trisomy 18 is //always// terminal, yet here you are standing here talking to us"